4 years ago

The National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System: Review of Program and Database.

Herndon, Fauerbach, Schneider, Gibran, Miller, Holavanahalli, McMullen, Bamer, Kowalske, Amtmann
The Burn Model System (BMS) centers program was created in 1994 to evaluate the long-term outcomes of burn injuries. As part of this multi-center program, a comprehensive longitudinal database was developed to facilitate the study of a number of functional and psychosocial outcomes after burn injury. In this article we provide an overview of the data collection procedures, measures selection process, and an overview of the participant data collected between 1994 and 2016. Surveys were administered during hospitalization and at 6, 12, and 24 months after discharge, and in the most recent funding cycle, data collection at every five years post injury was added. Over 7,200 people with burn injury have been eligible to participate in the BMS National Longitudinal Database (BMS NDB). Of these, over 5,900 (82%) were alive at discharge and consented to follow-up data collection. The BMS NDB represents a large sample of people with burn injury, including information on demographics, injury characteristics, and health outcomes. The dataset is publicly available and can be used to examine the impact of burn injury on long-term outcomes.

Publisher URL: http://doi.org/10.1016/j.apmr.2017.09.109

DOI: 10.1016/j.apmr.2017.09.109

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